11 skills in just 2 weeks! Took tedious hard work, but he eventually was a little chopstick expert, even with small vitamins. Another one of my favourite/tippie-top treatment arrangements, plus important novel cultural caregiver perspectives shared including on social validity.
On multimodal social validity assessment (including direct objective recipient measures) with heaps of practical implications, and one of my most preferred/tippie top/fun treatment arrangements and data collection keys to add (h = happy) ever. Variety record 224 🥇
What’s most touching is seeing so many ‘firsts’ – not only during the tube weaning program, but in updates from the families after. With all the complexity and hard work that goes into it, it’s so rewarding to finally see a child…
“Our review focused on looking at the evidence across different treatment options for transitioning children from tube feeding to eating (commonly known as tube weaning).” “Behavioural treatments reported significant gains in oral consumption and improvement in mealtime behaviours but there were less reports of children being tube weaned. Behavioural studies often involved children with very complex and severe feeding difficulties, and many had DD.” “A high level of treatment intensity is needed, at least over a few weeks. This involves multiple meals per day, over consecutive days.”
Surprisingly, despite its importance and attention given in discussion currently in our field, supporting data and research are very much lacking. Data are needed in paediatric feeding to help accurately disseminate this highly important, effective, acceptable, and valued treatment, increasing access to treatment for families in need to improve their quality of life, and increasing opportunities for training/education for professionals. This is the first report to our knowledge to analyse social validity data comprehensively across variables such as participant characteristics, goals, treatment processes, treatment components, and outcomes. Ratings were high across the board (4.8 & 4.9 out of 5). Check out the results/graphs/tables! Future research could get caregiver input to design assessments, and use methods to analyse open-ended data (as in Anderson et al., 2021), in addition to the extensions to this work in Taylor & Taylor 2022b.
